03
May
14

Saving Eliza – Photographers unite to help save this little girls life.

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Eliza O’Neill is a happy 4-year-old who, because of a degenerative genetic disease called Sanfilippo syndrome, may not live into her teens. If she doesn’t get the treatment she needs, she will lose the ability to speak within 6 months and suffer irreversible brain damage within a year and a half.
We want to make sure that doesn’t happen, and so SmugMug teamed up with Benjamin Von Wong and PetaPixel Editor in Chief DL Cade to make a difference. They gathered talented photographers from around the world, and together, we’re going to help save a life. Tim Wallace became part of this amazing journey to help save one little girls life when he joined the other global photographers in submitting work for free to to sold on Eliza’s behalf to help raise money.
Each photographer you see featured here has pledged to sell $1,000 worth of prints to raise money for Eliza’s cause and make sure we hit our goal by June, so that Eliza can get the treatment she needs before the damage becomes irreversible.
Your new wall art could make the difference for Eliza!

Saving Eliza
Visit the dedicated website for Eliza to read more of her story and to purchase a print and make a difference here

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A sick little girl, a cure within reach, just $2.5 million standing between her and a happy healthy life. Insurmountable odds by many people’s standards, but we know better than most that a single person can make a huge difference, so we got in touch and committed to doing whatever we possibly could to help this little girl live!
Money is coming in, the video is starting to go viral and do exactly what we hoped it would, but it may not be enough! Eliza and others like her are counting on us raising every cent necessary and we believe the many talented photographers in this amazing community of ours can help the O’Neill’s reach their goal!

That is what this site is about. If you’re a photography fan, go view the gallery of phenomenal prints up for sale. Every cent you spend will go towards Eliza’s cause and you will own a Limited Edition print from one of your favorite photographers! If you’re a photographer and you want to help, submit your work and become a part of this journey.

Join us, and together we can do this!

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Eliza O’Neill Story
Last July, our 4-year-old daughter Eliza was diagnosed with a rare terminal genetic disease called Sanfilippo Syndrome-Type A. In one terrifying instant, we were told that we would have to watch her fade away before our eyes.

Eliza and other children with this disease are missing an essential enzyme for normal cellular function. Over time, a toxic material called heparan sulfate builds up in their brain and body leading to severe disability and death before they even reach their teens. This disease affects both genders, all races, all countries and continents. It is everywhere and the world needs to know.

Eliza Today and Her Future
Right now Eliza is a fun loving 4-year-old who loves to sing, run and MOST of all, cuddle. She loves to play dress up and horse around with her rowdy big brother Beckham. She is, however, beginning to show signs of the disease in her learning and attention. And if nothing changes, it will only get worse from here.

By age 6, most children with her disease have irreversible brain damage and lose the ability to speak. As the disease continues to tear through her brain and body, she will lose the ability to walk and eventually she won’t even be able to feed herself as seizures ravage her body.

These devastating changes are a 100% certainty if she doesn’t get treated, and soon. It is a parent’s worst nightmare, and an unfair sentence for any innocent child.

Hope
But there is hope! There is a gene therapy trial scheduled for late 2014 that is specifically for children with Sanfilippo Syndrome. This treatment would save Eliza and literally stop this disease in its tracks overnight!

Cures this certain to work are a rarity in medicine, but we have one, we actually have one, and the only thing standing between Eliza and her miracle is money. The trial is lacking funding to remain on schedule, and every moment counts as Eliza approaches the tipping point when her disease will take an irreversible turn for the worst.

She and many others like her are counting on you to donate to the cause or share this story so that they can have a chance to leave their mark in this world… The clock is ticking.

Our Goal
Between October 2013 and June 2014, we are reaching out to incredible people like you to help us raise $1 Million through GoFundMe in time to save Eliza. All funds will go to support the Gene Therapy trial at Nationwide Children’s Hospital in Columbus, Ohio.

The total amount needed in the next several months is $2.5 Million and we are working day in and day out with other affected families. We have started our own non-profit 501c3 Cure Sanfilippo Syndrome (Tax ID: 46-4322131) with no paid employees. All donations here are tax-exempt. In several months, $250,000 total has been raised from running fundraising parties, 5K runs, golf tournaments and dance-a-thons…and we continue to work non-stop….WE WILL NOT GIVE UP, but we can’t do this without more help… there just isn’t enough time. Please become a part of this miracle with us.

Please Act Today
What would you do if you knew that money was the only thing standing between your child and their chance at a full and happy life? What would any parent do? We can’t let this happen.

We can’t stand by and watch our little girl lose everything she is, suffer unimaginable pain and frustration and ultimately die. What would we tell her big brother in a few years, when the disease has taken over completely? What would we tell ourselves?

Please help support our urgent, lifesaving mission. Every cent counts, but even if all you can do is forward this link to as many people you know, you will have our eternal gratitude.

Help us. Join us in our quest and then check back often to see how your contribution helped spark a miracle.

With your help, she will become one of the first children in history to survive Sanfilippo. Together we can make history and save thousands upon thousands of lives, so that never again does a parent have to break down in a doctor’s office when they find out that their child has this debilitating disease. With you help, the WORLD will know Eliza O’Neill’s name.

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Ambient Life Online

A selection of other online sites that offer a look into the work of UK Professional Photographer Tim Wallace.

www.ambientlife.co.uk


Photographer Tim Wallace is the driving force and creative thinking behind Ambient Life.
An award winning photographer he is probably best known for his commercial car and advertising work.

Tim works with many well known brands and clients such as Aston Martin, Land Rover and Kenwood in the US, and has recently been named as one of the ten photographers to be selected by Hasselblad for the quality of his work and creative vision to represent their new 'Pro Team' to be launched in 2010.

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